FOI 5864-Services for pelvic radiation disease

Date: 11 December 2019 to 11 December 2022

Does your Trust you have specialist clinics for patients who have had treatment for cervical cancer and are experiencing the late effects of pelvic radiotherapy, e.g. bowel or urinary issues (also known as pelvic radiation disease or PRD)?  

If so, please give details of:

The clinic(s) name and opening times

Annual caseload

The proportion of patients referred direct from oncology

The proportion of patients referred from their GP

Does your oncology team have a standardised method of identifying people with PRD for referral (e.g. by asking patients the questions in the ALERT-B tool to support the clinical assessment of patients suitable for referral to a gastroenterologist)?

Does your radiotherapy centre ensure patients are aware of possible acute and long-term side effects of pelvic radiotherapy before they undergo treatment? If so, how?

Does your radiotherapy centre offer a range of materials to support with acute or late effects of radiotherapy, e.g. booklets, symptom checklist, toilet cards? If so, what materials do you provide?

Do your gastroenterologists and dieticians use the PRD bowel algorithm, published in ‘The Practical Management of the Gastrointestinal Symptoms of Pelvic Radiation Disease’? https://www.macmillan.org.uk/_images/practical-management-gi-symptoms-pelvic-radiation-disease_tcm9-300557.pdf

  • Request ID:
    FOI 5864
  • Category:
    Patient - Activity Data
  • Response:

    Does your Trust you have specialist clinics for patients who have had treatment for cervical cancer and are experiencing the late effects of pelvic radiotherapy, e.g. bowel or urinary issues (also known as pelvic radiation disease or PRD)?    No, there are no Oncology Gynaecology Clinics at Medway NHS Foundation Trust.  Patients would be treated at the Kent Oncology Centre,  Maidstone and Tunbridge Wells NHS Trust who are contactable via their website at:  https://www.mtw.nhs.uk/

    If so, please give details of:

    The clinic(s) name and opening times 

    Annual caseload N/A

    The proportion of patients referred direct from oncology N/A

    The proportion of patients referred from their GP N/A

    Does your oncology team have a standardised method of identifying people with PRD for referral (e.g. by asking patients the questions in the ALERT-B tool to support the clinical assessment of patients suitable for referral to a gastroenterologist)?  N/A as above patients would see Maidstone’s Oncology and Gynaecology Surgeons. 

    Does your radiotherapy centre ensure patients are aware of possible acute and long-term side effects of pelvic radiotherapy before they undergo treatment? If so, how?   Radiotherapy is not provided at the Trust.

     

    Does your radiotherapy centre offer a range of materials to support with acute or late effects of radiotherapy, e.g. booklets, symptom checklist, toilet cards? If so, what materials do you provide?  As above, radiotherapy is not provided at the Trust.

     

    Do your gastroenterologists and dieticians use the PRD bowel algorithm, published in ‘The Practical Management of the Gastrointestinal Symptoms of Pelvic Radiation Disease’? https://www.macmillan.org.uk/_images/practical-management-gi-symptoms-pelvic-radiation-disease_tcm9-300557.pdf The Trust have gained advice from one of our consultants who advised that Gastroenterologists (and Colorectal Surgeons) in general do not get their guidance on best practice from this publication (The Practical Management of the Gastrointestinal Symptoms of Pelvic Radiation Disease), but rather from other guidelines. PRD is a rare condition and is seldom encountered at our clinics or in  Endoscopy.   The consultant who advised us has not personally seen a single case of this during the five years working at the Trust.  However, “The Practical Management of the Gastrointestinal Symptoms of Pelvic Radiation Disease”, suggests management comparable with what would be written in any current textbook of Gastroenterology or Endoscopy.