“If something doesn’t feel right get it checked out. It could save your life.”
That’s the message from Charlotte Flannery, who is sharing her story ahead of World Ovarian Cancer Day (Friday 8 May) after trusting her instincts led to her being diagnosed with an exceptionally rare form of the disease, with only around 100 cases recorded worldwide.
The married mum of six, who works as a surgical services matron here at Medway, said “I was at work when I started experiencing ovulation pain that just didn’t feel right. It was consistent and tracking down my leg. Prior to that I’d had no other symptoms.”
Following a scan, doctors discovered an 8cm mass on her right ovary. Further investigations and a referral to the hospital’s oncology multidisciplinary team followed.
Charlotte, 39, from Rainham, said: “Initially the team thought I had a dermoid cyst. These are typically benign and contain various types of tissue, such as hair, skin, and sometimes teeth. I had surgery to remove it but three weeks later the pathology results showed the cyst also contained a brain tumour and spinal cord cancer. These types of tumours are incredibly rare – with fewer than 100 cases recorded worldwide.”
Four months later Charlotte received the devastating news the cancer had spread and she needed surgery to remove three tumours from multiple sites. But that didn’t stop her from doing what she loves most – running!
“It’s always been my therapy,” she said.
“I was lucky enough to have a charity place for the London Marathon in April 2025 and I ran it 18 days after my surgery. The next day I received the news that the aggressive cancer had returned and I needed urgent chemotherapy which lasted for 16 weeks. Then last September I started six months of immunotherapy.
“Despite being a nurse, I quickly learned throughout my treatment that I am not a good patient. There were a lot of tears during the early scans and appointments and when I first walked into an oncology waiting room I just didn’t feel I belonged there and I walked out. I also quickly learned that google was not my friend!”
Due to the rarity of her cancer, Charlotte’s long‑term prognosis remains uncertain.
She said: “Although my treatment has ended, given the nature of my disease I am very closely monitored. I have monthly oncology appointments and three-monthly scans.
“I have received amazing support from my colleagues, friends and family and the Cancer Team here at Medway has been absolutely fantastic.
“To help me cope I’ve been going to the gym and running to give me the head space I need to process my diagnosis. I started writing a blog during treatment, which I’ve found very therapeutic. I also had counselling throughout my treatment with Macmillan Cancer Counsellor Karen Adams who helped me to accept my diagnosis.
“Macmillan Gynaecology Cancer Nurse Specialist Karen Flannery (pictured right) also really helped me and continues to do so. I’d have been lost without both of them.”
Reflecting on her cancer journey Charlotte, who ran the London Marathon again on Sunday 26 April, added: “It doesn’t end when your treatment does. My chemotherapy has left me with hearing loss and I now wear hearing aids, cognitive memory issues, confidence issues, weight gain, different hair, neuropathy that causes me to fall over and drop things, and chronic fatigue.
“I’m still me, I still remain positive and I take each clear scan as a win. Importantly I try to make the most of each day. Tomorrow is not a given for any of us but having a diagnosis means you are more aware of this.”
Charlotte’s message is clear: “Early intervention really does help save lives. If something doesn’t feel right get it checked out. Yes, it is scary but it is also very brave. Listen to your body. This goes for anything that doesn’t feel right, not just ovarian cancer. It could save your life.”
Ovarian cancer is often diagnosed late, but early diagnosis can mean it is more treatable.
Symptoms can include:
- a swollen tummy or feeling bloated
- pain or tenderness in your tummy or the area between your hips (pelvic pain)
- no appetite or feeling full quickly after eating
- an urgent need to pee or needing to pee more often
- indigestion
- constipation or diarrhoea
- back pain
- feeling tired all the time
- losing weight without trying
- unusual bleeding from the vagina, including between periods, heavier periods or after the menopause.
Anyone experiencing symptoms that are unusual for them or do not go away is encouraged to contact their GP.
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